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deCODE genetics

Controversies

Controversies tied to this brand in public sources. A listing is not a finding of fault.

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  1. 1998

    Controversy over the Icelandic Health Sector Database

    The proposed national database would have combined health records for research and commercial purposes under an opt-out framework. Privacy advocates and bioethicists challenged the project’s consent model, governance and commercialization of public-health information. Although deCODE received authorization to create the database, it was never built.

    Source