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Care-for-Rare Foundation

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A German foundation founded in 2009 that helps children with rare diseases gain faster access to modern diagnostics and innovative therapies.

Last updated September 16, 2026

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Nov 4, 2026
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Nov 4, 2026

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Overview

The Care-for-Rare Foundation is a foundation dedicated to children with rare diseases, described as the "orphans of medicine." It was founded in 2009 out of science and medicine so that children with rare diseases can gain faster access to modern genetic diagnostics and innovative therapeutic procedures. The foundation links care for seriously ill children with scientific research aimed at understanding the basis of disease processes and developing new therapies, cooperating with an international network of physicians and scientists. Its clinical research funding currently has a particular focus on diseases of the blood and the immune system.

History

The Care-for-Rare Foundation was founded in 2009 out of science and medicine, with the aim of changing the situation of children with rare diseases so that they gain faster access to modern genetic diagnostics and innovative therapeutic procedures. The foundation works with an international network of physicians and scientists, and its clinical research funding currently has a particular focus on diseases of the blood and the immune system.

Products and positioning

A foundation that connects care for seriously ill children with scientific research to develop new therapies for rare diseases.

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