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Invest in ME Research

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A UK-based NGO and research charity focused on myalgic encephalomyelitis (ME).

Last updated October 5, 2026

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Overview

Invest in ME Research is a UK-based non-governmental organisation (NGO) dedicated to supporting research into myalgic encephalomyelitis (ME, also known as ME/CFS). The organisation operates primarily through its official website, investinme.org, which serves as its main public information and advocacy platform. Its core work is advocating for and funding biomedical research into ME, a complex and often misunderstood disease. As an NGO, it operates independently of government and commercial interests, relying on donations and fundraising to support its activities. The organisation is part of international efforts to advance understanding of ME and improve diagnosis, treatment, and patient outcomes. Although available evidence does not provide detailed operational history or financial data, Invest in ME Research is recognised as a distinct entity in the field of ME research and advocacy. Its bilingual communication is limited, with English as its primary language. The organisation's focus remains on research funding, collaboration with scientists, and raising awareness of ME.

History

Invest in ME Research is a United Kingdom-based non-governmental organisation (NGO) focused on myalgic encephalomyelitis (ME). The organisation is known for its advocacy and fundraising efforts to support biomedical research into ME, a condition that has historically received limited research funding. While the exact founding date and detailed history are not provided in the available evidence, the organisation has established a presence through its website, investinme.org, which serves as a hub for information and research updates. As an NGO, it operates independently, relying on public donations and fundraising events to finance research projects and awareness campaigns. Its work aligns with a global movement to increase recognition and understanding of ME/CFS, and it collaborates with researchers, clinicians, and patient communities to drive progress in the field.

Products and positioning

Non-profit research advocacy and funding organisation for ME/CFS.

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